tag:blogger.com,1999:blog-7818585204845681268.comments2013-12-17T08:52:21.927-08:00Its not all about me?Unknownnoreply@blogger.comBlogger20125tag:blogger.com,1999:blog-7818585204845681268.post-78193804902351326092013-12-17T08:52:21.927-08:002013-12-17T08:52:21.927-08:00Its difficult when people won't listen, and wh...Its difficult when people won't listen, and when anything not "normal" is seen as wrong, or something to be corrected. I am always happy to help if i can, tho i'm not an expert, just an aspie. but we are what we are, and i wish you luck in your search for services to assist him.anonymousaspiehttps://www.blogger.com/profile/16572616148316652051noreply@blogger.comtag:blogger.com,1999:blog-7818585204845681268.post-10964731250853492772013-12-16T15:03:04.276-08:002013-12-16T15:03:04.276-08:00My son is non-verbal. You speak very well for ASD...My son is non-verbal. You speak very well for ASD. While we have come a long way in the understanding, we have a long way to go. Remember the "Deaf and Dumb" label? The same thing is happening with explaining the 'scale'. I have heard Professors explain, "Up here you have the high functioning who may be socially quirky, and down here are the non-verbal retarded". Their language NOT mine. My son is smart…..he just cannot speak. William Stillman helped us understand from the perspective of an Autistic person. Thank you for being so well spoken on this subject. You can do a lot of good by helping others understand. I do not want my son to be anything else. No one is as kind and truthful as he is. I would like to make it easier to communicate his needs. We are working on RPM for this. The Lovaas method of ABA failed him. We are not seeking a cure but could use more services that help him without diminishing his being.Jane Shttps://www.blogger.com/profile/09583785293845337832noreply@blogger.comtag:blogger.com,1999:blog-7818585204845681268.post-78775703102857772622013-12-16T13:39:11.954-08:002013-12-16T13:39:11.954-08:00i completely agree, and when I wrote my blog on it...i completely agree, and when I wrote my blog on it a few days after, when i had calmed down on asquality.org, that's pretty much my biggest issue. they had the information. this could all have been avoided.<br /><br />Still, its now only 4 days until take 2. hopefully i don;t have to write another blog like this.anonymousaspiehttps://www.blogger.com/profile/16572616148316652051noreply@blogger.comtag:blogger.com,1999:blog-7818585204845681268.post-44832883240950790462013-12-16T11:31:26.173-08:002013-12-16T11:31:26.173-08:00Surely this issue could have been identified in ad...Surely this issue could have been identified in advance. Don't they do all of that pre-op testing to identify problems before you show up at the hospital?!<br />I'm so sorry that this happened. While I know how angry and upset I would feel, I can't imagine how stressful this was for you. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7818585204845681268.post-15854608948571244142013-12-15T12:12:42.799-08:002013-12-15T12:12:42.799-08:00I think we need them to think about what they are ...I think we need them to think about what they are doinganonymousaspiehttps://www.blogger.com/profile/16572616148316652051noreply@blogger.comtag:blogger.com,1999:blog-7818585204845681268.post-83233490546349788892013-12-15T12:12:25.188-08:002013-12-15T12:12:25.188-08:00thank you. I appreciate the supportthank you. I appreciate the supportanonymousaspiehttps://www.blogger.com/profile/16572616148316652051noreply@blogger.comtag:blogger.com,1999:blog-7818585204845681268.post-72036323486535559322013-12-15T10:27:48.560-08:002013-12-15T10:27:48.560-08:00Added to https://en.wikipedia.org/wiki/Talk:Autism...Added to <a href="https://en.wikipedia.org/wiki/Talk:Autism_Speaks/Controversy_links" rel="nofollow">https://en.wikipedia.org/wiki/Talk:Autism_Speaks/Controversy_links</a> -- lots of other links there, if folks are curious.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7818585204845681268.post-89121959151581754692013-12-15T09:39:18.602-08:002013-12-15T09:39:18.602-08:00Thank you so much for this.Thank you so much for this.Lorihttps://www.blogger.com/profile/02454258188873701413noreply@blogger.comtag:blogger.com,1999:blog-7818585204845681268.post-62018891754214362552013-12-15T09:37:56.804-08:002013-12-15T09:37:56.804-08:00A wonderfully eloquent and elegantly written post!...A wonderfully eloquent and elegantly written post! Thank you!<br /><br />Leah KelleyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7818585204845681268.post-4202397851956563942013-12-15T08:09:36.987-08:002013-12-15T08:09:36.987-08:00i know what you mean, but i am prepared to accept ...i know what you mean, but i am prepared to accept - once - that it was a genuine error. So, they get a second chance, but there will not be athirdanonymousaspiehttps://www.blogger.com/profile/16572616148316652051noreply@blogger.comtag:blogger.com,1999:blog-7818585204845681268.post-23686230763587971822013-12-11T03:35:08.199-08:002013-12-11T03:35:08.199-08:00Bloody hell! What an absolute nightmare. I find it...Bloody hell! What an absolute nightmare. I find it hard to switch if i have prepared yo do something and get asked to do another. Sounds like you were being fobbed off, personally. @lostlodger1binkynoreply@blogger.comtag:blogger.com,1999:blog-7818585204845681268.post-77208596259057838812013-12-03T08:16:27.715-08:002013-12-03T08:16:27.715-08:00This speaks volumes to me... I can now see the we...This speaks volumes to me... I can now see the weird way people look at me. Before I was blind to it all! Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7818585204845681268.post-39325380254383647752013-09-17T04:08:40.587-07:002013-09-17T04:08:40.587-07:00It was absolutely terrifying, but its all worked o...It was absolutely terrifying, but its all worked out fo rthe best. 2 days into the new job and everything seems to be going well. conditions in the new workplace are so much better than the old one.anonymousaspiehttps://www.blogger.com/profile/16572616148316652051noreply@blogger.comtag:blogger.com,1999:blog-7818585204845681268.post-32639623725221756732013-09-15T02:39:03.788-07:002013-09-15T02:39:03.788-07:00Good luck with your new job. Man, that must have b...Good luck with your new job. Man, that must have been a nerve-wracking experience. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7818585204845681268.post-73668706817780226542013-03-09T02:23:14.709-08:002013-03-09T02:23:14.709-08:00This comment has been removed by a blog administrator.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7818585204845681268.post-54440638063323122632012-10-17T05:36:13.911-07:002012-10-17T05:36:13.911-07:00Thank you for your blog.
I'm waiting for a d...Thank you for your blog. <br /><br />I'm waiting for a diagnosis (...december). Reading your description of your everyday life is very interesting.<br /><br />Cheers from France.<br /><br />SamuelUnknownhttps://www.blogger.com/profile/01057967862686732957noreply@blogger.comtag:blogger.com,1999:blog-7818585204845681268.post-4071362136152450162012-09-20T04:30:43.449-07:002012-09-20T04:30:43.449-07:00thanks for the comment. Its always good knowing th...thanks for the comment. Its always good knowing that other people have had similar experiences.anonymousaspiehttps://www.blogger.com/profile/16572616148316652051noreply@blogger.comtag:blogger.com,1999:blog-7818585204845681268.post-44503646839178730482012-09-18T11:18:23.066-07:002012-09-18T11:18:23.066-07:00thankyou for posting this, it was an intresting re...thankyou for posting this, it was an intresting read, i didnt know it was As they were looking at when i was diagnosed but remeber just hoping they were able to find what was wrong and like you mentioned, something to explain everything. and by having this explination, it leading to a way to cope! Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7818585204845681268.post-49964566691474806322012-08-26T13:18:22.269-07:002012-08-26T13:18:22.269-07:00Thanks for the comments Sharon. I'm sure I...Thanks for the comments Sharon. I'm sure I'll see you around the boards :)anonymousaspiehttps://www.blogger.com/profile/16572616148316652051noreply@blogger.comtag:blogger.com,1999:blog-7818585204845681268.post-16482120614264849042012-08-26T13:11:53.731-07:002012-08-26T13:11:53.731-07:00Hi A2! I'm glad to see you here in the blogosp...Hi A2! I'm glad to see you here in the blogosphere. <br /><br />I started blogging 5 years ago, before I had dx. Now I find that folks are appreciative of me sharing my journey. <br /><br />Would love a visit and comments from you at my blog- livewithautism.us and you can check out my inspirational and fun AwetismVideos channel here - http://www.youtube.com/user/awetismvideos?feature=results_main<br /><br />We are working on a reality tv proposal -- I'll be following you here and on twitter! Take care-<br />Sharon HowarthSharon Howarthhttps://www.blogger.com/profile/07665299156863355722noreply@blogger.com