The pain of a "new" aspie

This is the email I sent to my wife yesterday, trying to explain my behaviour when she refused my help twice in the morning when she was trying to do a quick repair on a child's shoe.

"I'm sorry my frustration boiled over a little this morning.  You're right. You not taking an elastic band is nothing to get upset about. 
 
Its other things that are piling up, things that are concerning me more every day.
 
Since the Aspie question was raised, I feel that you have been looking at me in a different way, and I'm not really comfortable with it.  I always seem to be in your way, or interrupting you, or feel like I am interfering in something where you would rather I didn't.

I feel sad that trying to hug you elicits no reaction any more. I feel that when I kiss you, you seem relieved when the moment passes. Maybe all of this is my imagination, but it doesn't feel like it is.
 
I don't feel like you are viewing me as a partner any more. I feel like I am being seen as another child to be "dealt with", a burden to be borne and a problem to be handled.
 
And it frustrates me and makes me sad.
 
the elastic band thing was just another little thing on top of a pile of neuroses I have at the moment. It just felt like yet another way where I was just getting in the way, especially after my other suggestion had just been dismissed when i was trying to help you avoid having to stand holding a shoe for 5-10 mins.
 
And in the long run my worry is that we won't get past this, that "living with 3 disabled people" is going to be too much for you to handle. 

To my eyes it already is, and I wonder whether you're trying to figure out how to do it and  keep sane, or figure out if you could deal with the girls without me.
 
Honestly, I have days where I think you would be better off without me as I  would be 1 less person you feel you have to take care of, but then I don't know  how you would deal with the girls on your own.

I certainly wouldn't blame you if you said "too much".
 
I know that this has been hard for you, and will continue to be, but the thing that is hardest for me in all of this is not the stress of the summer, not the AS, not the reflection on my whole life, but its facing you every day and feeling I am less in your eyes."

An inexplicable worry explained

Around my mid-teenage years I remember becoming aware that I could be help responsible for things, a concept that seemed to elude me until then.  It was only when someone pointed a pretty serious accusation at me that I realised that things that I did and said could have serious consequences for me in my life.  At that point I resolved always to be completely truthful. Until then I had used truth or lies as I felt necessary, although there is no doubting that I am an awful liar.

But from that point I have always had the nagging worry that at some point i was going to end up in prison, and i don't know if that is normal. I assume its not. After all, why would people just generally worry that they were going to end up behind bars?

I have never been able to fully grasp this worry. I am generally a straight-up, honest and law abiding individual. Even times when I have broken the law during my wild years are unlikely to have carried jail terms: petty theft, smoking weed, illegal streaming/ downloading. But still, in the back of my head: you're going to end up in prison.  It really didn't help when wife's dad ended up in prison recently. It is the first time that it has been so close to home, and I overreacted hugely (of course).

But I begin to see now that the worry about prison was my brain's way of telling me that there was something wrong, that I didn't quite fit, and that I had to be extra careful as my rules and the rules of the NT world in which I live can clash.  A perfect example of this is when I was driving the other day and someone did a really stupid overtaking manuever on a fast junction.  Because he was breaking the rules I effectively tried to run him off the road, then when we reached the traffic lights I pulled in front of him, blocking 2 lanes, and had a confrontation with him on a busy road.

I started that. I could have just let him go, with his bad driving, but I almost crashed into him (my fault) then blocked the road (my fault) then nearly started a fight (which would have been my fault). if the police had become involved I think i would have been in serious trouble.

Looking at myself through the AS mirror I can see how close it has come a few times in my life that I had never realised before, and I need to be very careful which what I say and do to avoid getting into trouble.  I can't believe its taken me this many years to realise it.

Still, hopefully now I can avoid that prison which has been unconsciously following me around for years.

The strain of relationships

In  my life I have had very few serious relationships, and wife is the first woman I have ever lived with as part of a couple. I am aware that I have always had trouble interacting with girls I find attractive, and have found myself drawn to the  but unable to talk to them, first manifesting in high school with a girl I had a crush on whom I followed round during breaks. If I didn't know where she was it made me feel uncomfortable, and I know that it bothered her.  While she was a nice girl and we were occasionally friendly, she did have to ask me to stop following her around more than once.

It took me until I was 19 to have my first girlfriend (let's just skip over a couple of periods of investigation with other kids my age in late primary school years) and to become sexually active, and while we had a relationship which lasted 3 years it was not often healthy as I was obsessive and jealous and she was sexually liberal (and inducted a number of my friends in the ways of men and women)

Other relationships I have had have been of mutual convenience, self-destructive, short-term flings or simply disastrous   Fact is, wife is the only woman I have ever been with who I have felt comfortable with, who has made me see the world from another point of view.  I find her fascinating as well as lovely, although like all other people there is a lot she talks about that I have no interest in, but I am not so self involved as to completely ignore her. I just do the guy thing of smiling and nodding.

But...

but I wonder what harm I am doing her by staying with her. We have 2 children, one of whom has been diagnosed with autism, one on the path to a diagnosis of AS and then there's me, realising that I have AS, or am at that end of the spectrum.  Its all so very unfair on her. Wife is beautifully free-spirited, spontaneous, life-loving, a hippie and proud of it, but the hand that life has dealt her means that everything has to be organised all the time. There can be no spontaneity, no surprises, no sudden, unplanned decisions.  Routine, planning and organisation are her life now, and day by day I see the joy draining out of her.

And I wonder whether things would be better or worse if I was no longer part of the equation.  Since I have been with her I have been through 3 periods of depression, and there's no guarantee that this wont increase.  I have had 4 significant episodes of poor mental health in 8 years, and none before that(at least none where I knew that was what my problem was).

I am concerned that my mental state will only get worse, and that she will end up having to be nursemaid to 2 disabled children and a disabled husband who is mentally shattered, and I don't want to do that to her.

I am sure that defining the AS will help significantly, but I managed for 30 years without succumbing to depression, 30 years where i must have had AS, so it must be more than that.

What to do troubles me.  I love wife very much and don't want to do the wrong thing, but is it harder for her to deal with 2 disabled kids with the help of someone like me, and have to deal with my issues too, or to deal with them on her own?

Is this my lot in life? To never fit on to a relationship, to take the joy out of living?

I don't know, but its a thought that will certainly remain with me for some time.

Joining the community

In the last few days I have dipped my toe in the water of the Aspie and wider ASD community online, and I have to say that being able to see the struggles of others and reading about the support they receive has been  very comforting for me.
 After creating myself a twitter account and making a couple of posts under the #Aspie hash-tag I suddenly found myself receiving mentions and direct messages from people who wanted to talk to me and invite me to interact with the community at large.  To feel so welcome so quickly into a society where my experience has always been one of social awkwardness, long pauses, anxiety and not knowing what to say was a blessed relief.
 And its been very constructive: finding a good description of what it is to be aspie, joining a group to discuss ASD and Aspie issues or simply having people respond to you or forward your tweets
Finally after having spent so long feeling I have to work as hard as anyone else and never get the level of social acceptance that they do, I'm finding that there are other people out there who are having very similar experiences, and suddenly I don't feel quite so isolated.

Calmer now

After my panic this morning that it was going to be a bad day things have significantly improved.  I genuinely think that writing out why i was anxious really helped.  Seeing it written down enabled me to process it better.

I've always been a visual learner. Whenever I study for anything the best way for me to learn, even if i am reading something from a book is to write out the pertinent points. its as if the act of writing alone aids in my understanding of the subject.  When I was younger it seemed that the first time I wrote it down it would commit to long term memory too, as I never really felt the need to do any sort of in-depth study for exams and i would always manage to pass.  this seems to have faded with time, but that's the natural order, i suppose.

There are things i have been saying about how i view the world for years now, and i have always thought it was just idiosyncratic.  For example, I have always said that I can't picture myself in the future. Just can't see it! I can plan, I can diarise and I can prepare for the future but I can't visualise it. I certainly can't picture what i will be doing 5 years from now, how i want my life to be, what job i want to be doing or how I want to be living.  Its just not there and never has been.  Education or career choices have been based on what i think is interesting now, not on some long range strategy.

I really envy people who can get enthused about a job. I would love to be able to, I really would, but it think the only way that would happen is if i could use my skills to create a job role for myself based on something i really enjoy, rather than someone paying me to do something i don't really care about. The problem with that theory is that i don't really have any skills or particular interests that i could do that with.  so i am destined to spend my days doing work for other people.