Weathering the storm of unexpected change.

 I am furious!

Today, I was due to have surgery on my hand, a surgery which I had been preparing for since mid September, and been working through the details of since mid November.  Today, I got up at 5 a.m., as did wife and kids (well, actually, sometime between 5 and 6) to be at the hospital for 7. I had prepared myself mentally: go in early, get seen early, see consultant, see anaesthetist, go to theatre, general anaesthetic, surgery, wake up, go home. And to start with, it went according to plan.

Until the anaesthetist turned up, and decided he would rather do a local anaesthetic than a general, and spent time trying to pressure me into that. After 10 minutes of cajoling, I told him I had spent weeks preparing for general and I don't handle last minute changes of plan well. He could see I was getting upset, and agreed to do a general if that was feasible.

That shook me up some, and I started reading my book to try to calm down.  Just after 9, wife arrived, almost simultaneously with the returning anaesthetist, who tried to tell me as politely as possible that he was sorry but my surgery couldn't go ahead today, but the good news was that they had already booked another appointment for me in a different hospital.

So, to anyone reading this who knows about Asperger's  and has been following my blog, how well do you think I took that?  change of date, change of venue, sudden call off after an attempted change of plan on the day?

Safe to say the simplest description would be "not well".

I sat in silent shock, I cried, I stormed off, I came back and shouted, I stomped out of the building before coming back to try to find out when they had booked me for, and it turns out that they think the best time to operate is the day before my birthday (a day which has always been disastrous to me).

I was so angry! There's no way they can understand the amount of mental preparation I have put into this, not to mention discussions and agreements I have had at work - a job I only started the week before I found out I needed surgery - to ensure that they understood the need for this, and let me have the time off that I required.

And if the fact the surgery was cancelled wasn't bad enough, the reason for it was, put simply, that I'm too fat.

Seriously. I'm too fat to have surgery on my wrist and thumb.  Funny how that didn't come up in the hand clinic originally, or in the phone consultation when I gave them my details including my weight and height. No, I'm too fat today for the facilities at this particular hospital, and I'll need to have surgery at a different one.

So, to recap: the surgery was cancelled, on the day, at the last minute, when I was already in my surgical gown, wearing tags and with lines drawn all over my arm to indicate where incisions would be made.  The anaesthetist said I was too fat to have surgery and rebooked me to another hospital, closer to Christmas which has, by the way, already interfered with my Christmas plans.

Like I say - furious! It has taken me a good 3 hours to calm down to the point where I don't want to scream about this! This is exactly why we need services like ASQ to be able to collectively list experiences like this so service providers have something they can refer to and see examples of good/poor service and how it affects the ASD community.

So, now I have to prepare myself for surgery again, in 11 days, in a different hospital, at a different time, as well as come to terms with my weight - and let's face it, being told you are too fat for surgery, apparently because I would likely breather equipment, is something of a wake-up call!

Of course I can do it, but the level of stress this has given me today is just unreal. So much, in fact, o have decided to still have the day off work as I don't think I would have achieved anything in this frame of mind.

God bless the NHS.

December, and all that comes with it

November is over, and all the excitement of Christmas is coming.

I didn't blog once during November as I focused all my writing energies on NaNoWriMo, and seeing if I was up to the amount of daily writing that it would take for me to become a writer full time. Well, quantity I can do. Quality, not so much, but its all about practice. I enjoyed doing it, and hopefully I can keep motivating myself. 

An odd side effect is that now I no longer know what to do with my free time if I am not writing!

Anyway, December in all its glory is now here, and I am both looking forward to and dreading Christmas in pretty much equal measure.  Its only a week until I have my hand surgery, and while I know that its not a big deal - its only hand-surgery after all, not heart surgery - I am pretty anxious about it, and can't keep my mind off it.  6 weeks in a cast also does not sound like fun over the holiday period.

Still, I get 2 weeks paid off work over Christmas, so that's good.

But things I am most concerned about are thusly:

• ASD Daughters getting more and more hyped up, with no space or time to calm down. Meltdown City, if last year is anything to go by
• parents coming to visit for Christmas for first time. this will add to point above, and put wife in same category. She likes my parents, but this is pressure!
• Operation going badly, leaving me less able over the period.

now I love Christmas, and everything that goes with it (other than drunk drivers and office parties) and normally I don't stress about anything like this. I just relax and enjoy it, letting the good old Christmas spirit take over, but in recent weeks, wife has declare her theory that ASD people love Christmas because they are programmed to from childhood, with everything reinforcing how wonderful Christmas should be, and we are effectively forced to love it, meaning that a bad Christmas to NTs is an absolute disaster to NNTs, and that maybe if we thought for ourselves, we would see that Christmas wasn't that great.

And I was gutted! She didn't use those exact words, but I followed through on her train of thought, and it made me sad and a little angry that she was telling me that I only like Christmas because people have told me to, and because my brain is abnormal.  It really hurt, but I couldn't tell or show her that because I felt it would only reinforce my abnormality.

It hurt, and it made me sad, and it only reinforces the feeling I have that wife and I are drifting apart, but that's a blog for another day.

Right now I have presents to wrap, cards to write and a family Christmas to prepare for.

The scourge that is Helpful People

Whether its part of my nature, a product of my environment or just something to do with being aspie, I have trouble asking for help.

Mainly, I just don’t feel I need it. Whatever I am attempting to undertake, I am perfectly competent to achieve, or I wouldn’t have started it in the first place. Simple, pragmatic fact.

Except its not a fact.  In what I know is a very aspie way, my view of the world is very black and white. I have trained myself over many years to perceive the almost invisible shades of grey that NTs see in everything.  And I can now, when I try, perceive those shades of grey in most things, but almost never in myself or my own abilities.

After a very long day, I was having trouble using the computer at home; simply selecting the option on a drop-down menu in Word was proving a hell of a challenge but, because I know that I am competent at using Word, when wife started making suggestions and, worse, pointing at the screen and showing me where to click, I verbally lashed out at her. I finished what I was doing and went to the kitchen to put the kettle on to make tea – my classic move of “I’m leaving the room, leave me alone” – and have a bit of quiet time to calm down.

Which would have been great if wife hadn’t then came in and said that when she tried to help it would be nice to have some gratitude.

Cue fight.

Now I’m sure any aspies reading this will understand the problem. Its not about someone helping, its about someone effectively questioning your competency, and trying to “help” where help is not necessary – even when it is!

The fight was brief, and I did explain to wife my frustrations at my own performance and the perceived criticism, but that I did appreciate that she meant well, and so its all sorted out.

Until next time, when virtually the same thing will happen again and we’ll end up having the same fight.

So, I need a solution; how do I convince myself that someone’s offer of help is not about criticism of me or my ability but a genuine offer of assistance with no agenda, particularly when I am rattlin’ (a good colloquialism for on the edge)

For now, I am simply going to watch for these instances and make a note of how often they happen and what my response is, how often it becomes a fight.

I suppose sometimes letting someone must be better as it will keep the peace, and there are days where its better to keep the peace than make a point, right?

 

Diagnosis!

Finally!

After a year or more of waiting, I have been diagnosed with Asperger's syndrome.

So. Aspie. Just as I had thought, hoped and feared.

And while it comes as a tremendous relief, it is also tinged with sadness as I know I can never be "normal". but then what is normal other than the average you get when you throw all elements of a sample together and find what is in the middle. No-one necessarily fulfils the criteria of normality perfectly, I am just farther from it than other people.

And in a lot of ways this is a good thing. I have a name for my little box, I can study it and I can become more self-aware. There are many other people who don't have this privilege; other people that don't have a ready-build support society both online and offline to assist in any adjustments and give advice.

I had always intended to "out" myself once I was diagnosed, no longer using the anonymousaspie handle and just using my own name (or at least my own picture), but over the last year I've become quite used to being A2, and to be honest I do still want some level of anonymity.  As some people have observed to me, much of my blog is very personal and brutally honest.  I know some of it would shock and upset my wife, and I don't really want to do that, so for the moment, so that I can continue writing with complete freedom, I'm going to stick to being anonymous.

What comes next?

Well, basically, nothing. Life goes on. I tell people who I feel need to know, I look into what support mechanisms exist and see if they would help me.  But in essence nothing changes other than I have the confidence of knowing who and what I am and where that puts me in relation to the rest of the world.

I can't actually imagine a more positive outcome than this.

Opening up: Asperger's & the new job

Its Day 4 of the new job, and while I am still waiting for that diagnosis (see previous blog) I have already made sure that both my line manager and the person I will be working most closely with, one of the office deputies, are aware of my situation.

On day 2 they decided to have a 10 minute chat with me about how it affected me, whether there was anything they could do to help and how it would manifest if there were issues.

I was really happy that it felt like someone was taking an interest without taking a negatively slanted view. Indeed, my line manager said that after she thought about what it meant, we could do with a few more with a touch of Asperger's in this line of work. It felt good :)

So, onto the job itself.  Mainly I am chaecking the structure of a data system and adding information to it under a strict set of guidelines with some complex user-tools.

Which means it suits me down to the ground.

I decided it would be nice to create a quick list of Pros and Cons comparing this job to the last one, and the results were as follows

Cons

• It pays less

Pros

• I don't have to deal with the horrific bitch who ran the last place
• My commute from door to desk is 8 minutes
• I am working in the same location that my wife is undertaking her teacher training and work placement
• My level of responsibility is significantly lower
• I am not responsible for other people
• It is less stressful
• Communication is much more open and honest, so there is very little politicking going on
• There doesn't appear to be any "us" and "them" within the department
• I can park 2 minutes walk from my desk
• There are gym facilities on site that I can use
• There is a library where staff can hire out DVD's. for free :)
• The atmosphere is much more laid back
• I get 4 days more holiday than I got at the old place, and thats at the starting allowance!
• There don't appear to be any periods that I can't book holiday during

OK, I'm only 4 days in and it already looks pretty good!

The other thing that is making me happy today is this: I have discovered that my former workplace have made my position redundant. Why does this make me happy? Because it reinforces my claim that they were trying to force me out, and it would mean that a case for constructive dismissal is more likely to succeed.  Added to that is the fact that they had a round of voluntary redundances a few months ago. I inquired informally about VR and was told that my position was too important to be made redundant, and so i was not eligible.

So, my former boss lied to me, denying me a redundancy payout, then bullied me out of the job and made my role redundant. 

I think i might just be talking to my union rep and possibly my solicitor very shortly.

The endless fortnight!

Last week I attended my final session with the psychologist team responsible for my diagnosis. They were very nice, very supportive and made me feel at ease. For the first time I can remember I went into a situation knowing that I didn't have to wear my mask, didn't have to watch what I said or how I said it. If anything, being careful of what I said and how I said it would potentially hamper the process.

At the end of the session they said that they couldn't tell me anything until they had made their diagnosis, but the lead professional did say that given the evidence, the diagnosis of Asperger's was a very real possibility. But it might take up to to 3 weeks for them to make their diagnosis, at which point they woudl get back to me for one final session where we could discuss the outcome.

That was a week ago.

I'm not sure how patiently I can wait over the course of the next few weeks. to me, the question of aspergers was resolved long ago. i mean, i wouldn;t call myself anonymous aspie if I didn't think I was aspie, but there is always danger in self-diagnosis that there is a professional that will come along and argue with you.  My problem is that, no matter how sure I am that I am aspie, until I have a confirmed diagnosis from a medical professional I will not be happy.  Basically, its not good enough that I know the answer, I need someone to acknowledge that I am correct (which is, sadly, part of my Aspie brain - "VALIDATE MY ANSWER! CONFIRM MY CORRECTNESS!")

I know its not long but it is becoming the longest wait fo my life, longer than waiting for my kids to be born - no, wait, they were both premature. That's not a good example - longer than waiting for the next series of Game of Thrones!

2 Weeks. I should know by October. That's not too bad, right?

Right?

Topsy turvy world

What a few weeks its been!

I had a meltdown at work. A full-on, screaming,  body-shaking uncontrollable rage meltdown which resulted in me going fully overboard, quitting my job and storming out.  There's more to the story, and it involves me putting a formal complaint in against the head of the department and working out my notice once in was assured that I wouldn't have to work with her.

But it was awful. I have never felt so out of control, so helpless and so frustrated and so ANGRY! I swear that woman deliberately goaded me into the meltdown, just so she could fire me due to my reaction.

Anyway, I left.

So, jobless, panicking, wife starting college, daughters just started school after summer holidays. For someone like me who thrives on routine this was as traumatic as it could have been.

So I work out my notice and on the last day, last Friday, I still did not have a job to go to. Terrified for what the future was going to bring for me and my family I left the workplace almost in tears. I was happy I wouldn't be going back there to work with that bullying, discriminating bitch, but just so worried.

And on Monday I had an interview, which by Tuesday had become a job offer and by next Monday will be back to full time gainful employment.

Awesome!

It just goes to show that sometimes throwing yourself into the abyss of uncertainty can have positive consequences. I have taken myself so far out of my comfort zone by doing this, but I think in the long run it will have positive benefits, not only taking away the stress of working in that place for that woman but just for the experience of having taken a leap of faith and have it work out.

The Process

On 21st of August, in a small, secluded little collection of buildings, I began my assessment process.

It has taken a year or so to get to this point, and the outcome is not guaranteed, but I have no words to describe the immense sense of relief to be talking to experts, discussing Aspergers as a condition, to be undergoing diagnostic process, to be able to just let go and tell someone who might understand just how hard it all is on a daily basis; how hard it is to care, how hard it is to make sure I am giving appropriate responses, how hard it is to keep control of my tongue and make sure that I'm not inadvertently offending the world.

I have seen them 3 times and they have decided they have all the information they need to consider what, if any, diagnosis there will be.  While they couldn't say for sure, they did say that there is a very good chance that Aspergers would be the diagnosis.

And I got an odd rush of emotion; sadness, anger, anxiety and relief. I had to take a few minutes to sit in the car on my own quietly just to let it all sink in.  Finally, maybe, I have a framework to help me understand myself. But isn't it funny that I need someone else's permission before I can fully grasp it?

My self-destruction: an analysis

I am aware I have been driving myself down a self-destructive path.

I am aware i am overeating and putting on weight and not only am I not addressing it, i am getting more gluttonous

I am aware that I keep not taking my medication, and every time I think about it, and look at it, I decide against it.

I am aware that I am suffering from depression, but I am no longer addressing it

I am aware that I am a slave to my rage, and I can't control it.

I am aware that I am close to the edge of physically lashing out, and I am not restraining it.

I am not really aware of why.

This weekend has been horrific. Twice I have had a complete screaming, lashing out meltdown in a fashion that I have not had since my late teenage years, and on both occassions the catalyst has been something very minor.

But the meltdowns have been linked: both of them have been due to DD1 giving no ground and not compromising, just as I would have done at her age. Suddenly I see how hard it was for my parents to cope with me growing up; how hard it must have been to have someone so absolutist who had no fear, no sense of compromise, and no matter what will only do what they want to do.

And I have 2 of them.

But my reaction to the minor things was far more than was necessary: slamming doors, screaming, hurling furniture and overturning bins.

If i'm honest, I'm surprised wife hasn't left me.

And maybe thats what I want.  Maybe its just time for me to admit that I am not flexible enough, and not able to cope with living in a house with 2 kids with ASD while trying to cope with my own limitations. Maybe I need to be honest enough to say that what I want is absolution from responsibility, but to achieve it i need to become the wretch no-one wants to live with.

I know it seems incredibly selfish -  No, not seems: IS incredibly selfish - but I just need time and space away from my kids to get some sense of sanity which I am sadly lacking at the moment.

I have been through the wringer with all of this though. Rage, hate, shame, self-pity, self-loathing, guilt, anger and, once again, those suicidal thought.  I stood in the bathroom on saturday after my meltdown, preparing to shave with my cut-throat razor, and i found myself simply standing, naked blade open, feeling its weight in my hand, looking myself in the eye, and feeling that urge that I get to do something I know I should not.  I actully had to picture what using it on my own neck would be like and the horrific aftermath for my family, including the permanent mental scarring of my children before I could move on, and simply shave.

And now, looking back at it, I'm scaring myself. Seriously scaring myse;f  I may well have scared myself out of this fugue.
 God I hope so.

So, where am I now and what would come next?

well, for a start i'm going to make sure i take my pills. they may not make me happy but they certainly don't make me feel this bad.
I am going to try to find rage counselling
I am going to try to find some physical activity to give me a physical release
I am going to try to find a hobby that takes me out of the house and gives me a change just to be me on my own terms, possibly with other people.
Most importantly i am going to be inclredibly thankful for the wonderful, supportive wife I have. Yes, we have had ups and downs, but I don't know if anyone else would have tried to strap-in with me and help me, particularly after my completely aggressive flip out. I am sure she was scared of me in that moment, but she was more concerned than scared and helped me find the way out.

I truly do need to appreciate her more.

I wish I had spent more time at the office

I was really looking forward to Easter Weekend.  I get the Friday & Monday off (thank you Bank Holidays), and there was some very promising television, namely Doctor Who, Game of Thrones, Revolution and Life's too Short.  I genuinely thought I would have a great time.

Simultaneously, however, I decided to see what would happen if I stopped taking my medication.  We're not talking anything really serious, just antidepressants (Citalopram, 40 mg daily).

And for the first 2 drug-free days I felt fantastic. This was Wednesday and Thursday, and I was absolutely pinging off walls, upbeat and lively and having great fun in work. It was the first time in a long time that I felt connected with people in the work environment and really talking to them. I even listened to them and paid attention.  I started to wonder if the drugs were actually doing more harm than good, so come the weekend I was confident I was going to have a great time with my kids and my wife!

Ok, the short version is that this didn't happen. What did happen was tetchiness, car sickness, unnecessary screaming, incorrect plating up of meals, incorrect plates, dislike of previously favoured foodstuffs, short tempers, thrown toys, short notice visiting/ visitors, silently counting to ten, weeing in chairs, defiance, gardening in a bloody cold wind and demand for trips out.

All in all, I would rather have been at work, which is a sad indictment of my ability to spend time with my family.  I have been high and happy at work followed by depressed and angry at home, and I don't like it.

As you might expect I have started taking my pills again, but what I really need now is a day completely to myself with no interference.  I can feel my head pounding and the thoughts trying to get out. I can feel the frustration under my fingertips vibrating with pent-up anger as i watch myself back over this "holiday" weekend, and see how little it felt like a holiday to me.#

I really just want 1 day of peace but don't know how I can achieve it, so in the short term I'll look forward to a blessed day of relief by going in to the most stressful office I've ever known.

Compared to this weekend it'll be a Zen garden.

Finding the balance: Social interaction vs: social isolation

this is approximately how I socialise

I like being in my own company.

I don't get lonely on my own very often.  I don't feel the need to be with other people. I don't enjoy being with most people and, frankly, if I can avoid a social engagement without offending people, I normally will.


I do understand, however, that this is not universal, and a lot of people would say this is not normal.

At the moment, Wife is trying to encourage me into more social activities. With all the changes that have happened to us in the last 12 months, she has decided to be more pro-active about her own social life rather than relying on me for one, and so now she has joined 2 different folk music groups, and her weekends are normally taken up with practice, ceilidhs, gigs and gatherings.  And she loves it. It makes her very happy.

So, understandably, she is trying to encourage me to find something that I am passionate about and locate a group to join. This isn't a new drive on her part, but it is more sustained than it has been previously.  I completely understand her perspective: that finding something you love to do is a blessing, that its fun, that it will help me develop friends and relationships, that she won't feel the pressure of being my entire social circle.

But here's the thing: while I'm not against the idea of having a social life per se, the more she tries to talk/ force me into doing it, the less likely I am to do it.

There is also the fact that the people with whom I am most likely to spend time are people not too dissimilar from me. Gamers, geeks, nerds and social outcasts, and if I'm perfectly honest, most people like that make me cringe, and while I might be happy to game with them, i really don't want to spend social time with someone likely to incorporate RP conversations into real life activities. I just can't deal with that.

What wife doesn't understand is that the biggest issue for me now is one of confidence.  Before I realised the extent of my difference from other people I was bulletproof in social situations: full of confidence uncaring about what other people thought of me and happy to do my own thing. It didn't occur to me that there could be anything wrong or inappropriate about what I said, what I did and how I approached people.   Now, however, things are different.  I am now very aware of my shortcomings in comparison to "normal" people, and i can't stop worrying about whether I am offending people, upsetting people or acting inappropriately.

Which means I am boring. I do nothing. I don't engage in conversation of my own accord, but wait for people to talk to me - which given that I am the silent stranger in the corner happens rarely.

I feel its a conundrum.  I don't want to socialise for the sake of it, but I can see that Wife thinks it will help both of us.  I don't mind doing it, but don't want to be forced into it. I can't be the brash, confident person I was before - turns out ignorance really is bliss.

I will work on it as i don't want to completely isolate myself, particularly with my recent marital issues, but I don't know what the solution is.

Is there a socially acceptable way to say "your tits look bigger!" and other stangeness

I've fallen into bad habits.

That is to say, I've fallen into my old habits, and am acting like nothing is different (again!). I have to admit its very difficult to reconcile the ASD side of myself with my self-image.  I find it hard to acknowledge that there is something different about me (there definitely isn't anything wrong with me!) when what I am is all I know.

But there are days, like today, when my strangeness is right out there in the open and I just can't escape it.  And when i do, I come running back to blogging like an old friend who will not judge me. Maybe this'll teach me to do it more often again. Who knows? (rhetorical)

Today alone I have had 2 incidents within the space of a few minutes which unbalanced me.  Firstly was when I overheard a conversation about one of the people in work needing to borrow a laptop - a scarce resource at the moment - and being told that we couldn't help. She then realised someone else who she would be working with may have one, and expressed this by saying "Steve might have his laptop, mightn't he?"

My face flushed and my stomach grew taut. I could feel myself starting to hyperventilate and had to keep my head down until they left the room. I immediately scuttled over to another colleague and asked "what do you think of the word "mightn't"?". She pondered this for a moment and said "well, its a colloquial use term, but not one I would use myself."

I frowned "so my instinct to throttle her for it is an overreaction?"

"definitely".

 That was an hour ago, and I still don't think it is! MIGHTN'T?!?!?!?!?! There aren't enough swear words in the world to express my distaste.

Shortly after that, I walked past another colleague who is lucky enough to be pregnant again, and I noticed that as well as her swelling belly, her chest is growing. She is fairly flat-chested normally, so its noticeable.

 I wanted to try to find a polite way to mention this, which appears to be an impossibility

 wow, you're really starting to swell now.  Have you had to buy new bras yet?  no, that makes me sound like I am interested in her underwear.

Are your nipples all sensitive? hmm... a definite no.

how many sizes have your boobs incre...just stop.

I found myself stuck in an obsessive loop: I can't not say anything, but there is nothing I can say, and I started getting frantic and panicky, and had to go and talk to the new girl (who is middle aged and sensible) with whom i have developed a decent working  relationship, just to say to her "Can you tell me if there is a polite way of telling a woman "your tits look bigger". I muddled this sentence out all in one, so it was more like

"Imsorryi'mnottryingtobeoffensivebutcanyoutellmeifthereisapolitewayoftellingawoman
"yourtitslookbigger"becauseihavetosayitandmybrainismelting!!!"

she took it in her stride, laughed with me about my dilemma and gave me a few tips on talking about how well my pregnant colleague is blossoming/ blooming/ looking flush with health. All of which will apparently be interpreted as "i can see your bosom expanding."

So I did.

And I am left feeling disappointed as I don't feel I said what i wanted to say, but at the same time the compulsion has left me and I can move on.  I'm glad its over, but it has jst served to remind me that all it takes is 2 minor incidents in quick succession and I am close to my limit.  I need to find a way to cope better.

Star Wars geekery

OK, so I'm back here.

My website is all well and good for other stuff, but I like this place for just being able to write a simple blog.

And today, I have just had fun!  wife pointed out a bunch of Star Wars snowflake templates to me, and I just couldn't not do it!

Here are my Imperial Guard and Scout Trooper snowflakes.  Am I ever proud of myself for this!

This is my A-Wing.  It was one of the first ones I did cos it looked easy.  Since then i have also done an X-wing, A TIE-fighter pilot, C3PO and Boba Fett!

And it gets better! I am planning to do a Vader as well!

Wife subsequently suggested that I use sticky plastic to cover them , which i have done, and so now they are resilient, and will last for more than just 1 day before they fall apart.  I now have annual geek snowflakes to go with my centerpiece of Optimus Prime in a Santa Hat done as a cross stitch.

Some days embracing my geek rules!

The anatomy of love

I have said for many years that you choose who you love, and I believe it. With all the girls I have pursued over the years I remember actively deciding that I was going to pursue them, and effectively selecting them for love.  I know not all of them have appreciated this but hey, everyone was someone's stalker once, right?


But now I am looking at things with my Aspie hat on I have started wondering if this is normal.  The fact that people have disagreed with me about it many times suggests that it is not.


From all around me in advertising, films, literature and people's descriptions of their own lives I get the message that love is an impulse; uncontrollable, unpredictable, that "the heart wants what it wants."


Not mine. My heart wants what I tell it to!


I've always felt that people who walk the "heart want" line are simply absolving themselves of responsibility to their existing relationships, being lazy or simply (badly) justifying adultery. I read a quote from Johnny Depp recently, and while I can't remember it word for word, it was along the lines of "if you love 2 things equally, choose the second, as if you really loved the first one you wouldn't have fallen in love again".  This just smacks of desperate justification and I just hate this binary view, that it is only possible to love 1 person.


But what if I am wrong? What if love is that wild and unpredictable? What if I am defective in my emotions, and simply don't have the normal "love" drive?  I am very much a slave to some of my other emotions - rage, frustration, anger - but I never hear anyone waxing lyrical about "the hands punch what the hands want to punch", but this is where I feel my strongest emotions lie, and when I lose control of them I know that people around me worry as I become aggressive and unpredictable, and it takes great effort of will not to be violent (I am well practiced by now. Violence only happens to inanimate objects)


But I wonder. Is this what neurotypical people feel when they are in love?  Overpowering, madly distracting, unfocused emotion that practically paralyses them until they can deal with it?


If so, I'm glad to be love-deficient, and glad I make my own choices.

The pain of a "new" aspie

This is the email I sent to my wife yesterday, trying to explain my behaviour when she refused my help twice in the morning when she was trying to do a quick repair on a child's shoe.

"I'm sorry my frustration boiled over a little this morning.  You're right. You not taking an elastic band is nothing to get upset about. 
 
Its other things that are piling up, things that are concerning me more every day.
 
Since the Aspie question was raised, I feel that you have been looking at me in a different way, and I'm not really comfortable with it.  I always seem to be in your way, or interrupting you, or feel like I am interfering in something where you would rather I didn't.

I feel sad that trying to hug you elicits no reaction any more. I feel that when I kiss you, you seem relieved when the moment passes. Maybe all of this is my imagination, but it doesn't feel like it is.
 
I don't feel like you are viewing me as a partner any more. I feel like I am being seen as another child to be "dealt with", a burden to be borne and a problem to be handled.
 
And it frustrates me and makes me sad.
 
the elastic band thing was just another little thing on top of a pile of neuroses I have at the moment. It just felt like yet another way where I was just getting in the way, especially after my other suggestion had just been dismissed when i was trying to help you avoid having to stand holding a shoe for 5-10 mins.
 
And in the long run my worry is that we won't get past this, that "living with 3 disabled people" is going to be too much for you to handle. 

To my eyes it already is, and I wonder whether you're trying to figure out how to do it and  keep sane, or figure out if you could deal with the girls without me.
 
Honestly, I have days where I think you would be better off without me as I  would be 1 less person you feel you have to take care of, but then I don't know  how you would deal with the girls on your own.

I certainly wouldn't blame you if you said "too much".
 
I know that this has been hard for you, and will continue to be, but the thing that is hardest for me in all of this is not the stress of the summer, not the AS, not the reflection on my whole life, but its facing you every day and feeling I am less in your eyes."

What I'm hiding from

For a week or so now I have been aware that I'm avoiding writing a blog, I'm avoiding tweeting, and I am avoiding thinking about or addressing "the Aspie Question".

And the reason for it is pretty simple, and pretty sad, really. I don't want to acknowledge that I am Aspie.

There are some days where the knowledge of AS and how it relates to me is a real comfort, as it means there is something that explains the often inexplicable in my life: the odd choices, the strange habits, the behaviour that even I have never been able to justify.

But then there are the other days, where I realise how different I am, how little I understand the people around me, how often I am excluded from conversations in a passive fashion, just because I can't read the body language of others, and I don't react as they understand.  Sometimes I look at it, and think that this is too much of a burden to bear, that if I stop acknowledging it I can continue on with my life as I understood it before someone suggested I might be Aspie.

However, today has stopped me in my tracks because of two incidents, each of which is powerful in their own right and together brought me to tears.

At my work, one of my colleagues has M.S.. I am her line manager, but she is one of the only people who I have told about my AS issues, because I feel she understands what it is to be different but look the same, and I really value her opinion and just to have someone to listen to me who can get it.  To be honest I see her more as a friend than a colleague. A couple of days ago she had a M.S. relapse, and as a result has permanently lost some feeling in her hand, her arm and her leg, and some bladder control.  She told me this, and I was truly sad about it.
 Today, I was spoken to by my boss, who told me that my colleague with M.S. doesn't feel she can talk to me as I gave very little reaction to her news to me about her relapse and her lack of feeling in her hand.  I was appalled! I am really sad for her and sometime give her lifts into work to try to make things easier for her, and am genuinely concerned for her well-being  but to hear her view, apparently all I did was stop typing for a few seconds when she told me, then started typing again.
 When I told my wife about this, she said that's normal for me. the bigger the news, the more emotional, the less likely I am to react to it. I simply sit still and absorb the information. I wasn't really aware of this, but I thought back and realised that she's right. Petty things can get me very animated. Big things stop me dead.

But following on from this, wife said to me that it often appears that I take things too well, and I joked about when our eldest was born by c-section. I was at work and the hospital called me to tell me that I didn't have to worry and that the baby would come today, I just said "OK, call me if the plan changes" at which point the person on the phone said "ah. no. you're maybe being a little too laid back. you need to come to the hospital now!" Wife didn't laugh though. she pointed out that she had thought about that recently, in the light of AS, and realised that this was typical of my reaction. someone said not to worry, so I didn't, but it hadn't even occurred to me that she might feel lonely, or in need of company, sitting lone in a delivery ward awaiting an emergency c-section, which is major surgery when you come right down to it.

And so I sat there, at the dinner table, considering that moment of 5 years ago, realising that not once had I considered how lonely and scared she might have been; how worried for our baby's health. I don't know what I did think, I really don't. but sitting at the table, for the first time, I became tearful thinking about how hard it must be on wife. 2 AS children and an AS husband who is now undertaking a journey of self discovery.  How hard is it on her to hold all this together. how often her needs get put last. how often her desires get overlooked.

And while I deny my Aspie nature I will never change, and I will always be that self-absorbed.  So, my task tonight is threefold:

1 - Read theories on Aspergers and dealing with it by experts, and find things that work for me
2 - Write my blog and remember why I started doing it in the first place as a self-therapy
3 - Acknowledge, and never forget.

Some days its hard, and some days its ok, but its an ever present fact that I need to face

I am Aspie

Stress in the workplace: How do I avoid it?

I find myself caught in a bit of a bind at work, at the moment. My co-workers expect me to do the same job I was doing before I had a month off due to stress and depression, while not seeming to realise that the job I was doing was the reason I had that time off.

So today, when I was asked to return to producing a weekly report rather than the monthly one I had changed to since coming back to work, I said no. Firmly. I even then explained that the repeated report writing was one of the reasons that I had had to take time off: too much expectation on me and too much criticism of the report, which was really only meant to be a tool to allow other people to complete their work. The criticism of the report became "shooting the messenger" and attacking it became more of a focus than dealing with the problems highlighted within it.

So after I made it clear that I wouldn't do it more than once per month, what I got was not a head-on attack but a barrage of sideways, sniping comments criticising me for being intransigent and questioning what use this report was.

To be clear, this data is available to everyone. Anyone could do this, given willingness to devote time to it. It’s not like I am the sole source of the information.

Anyway, I found that I couldn't deal with the passive-aggressive criticism and decided to deal with the situation in the best way I could, by picking up my things and walking out of the room. I fear, however, that this may not have been the best solution. It meant getting chased down the stairs by the deputy head of the department (my mentor) who wouldn't let me just go for a walk and clear my head but made me talk about it. As I didn't have the time to resolve it internally or calm down it means I resorted to a foul-mouthed tirade, threatened to walk out and let out my feelings on the guy who caused me the most grief. I don't think any of this was helpful. Looking back on it, my attempt to defuse myself has made me look unprofessional, childish, resentful, aggressive and unbalanced.
I feel I am letting myself down and don't seem to be able to find a way to fix this.

Finding out that I may have Asperger's has certainly opened my eyes to a lot, including why I react the way I do, but it doesn't always help me control my reactions or judge what is the best course of action in a situation. I can't gauge at the moment whether I did the right thing, but it doesn't feel like I did.

Right now I feel vulnerable and alienated, and I feel that I am being judged on the way I am trying to avoid the stress. I don't really know what I can do.

And as a beautiful irony, the guy who caused me to need to leave the room has just come to me to ask for a different report I promised him (this was no problem) and told me how hard it is to walk a line about firmly stating a position without offending people.

Not knowing is the worst!

In the next 3 days I am seeing a psychologist, and occupational therapist and undertaking an exam on accounts. I am also meant to be undertaking a project for my accounts qualification, but am currently 2 months behind and it is the last thing on my mind.  As well as that I have numerous projects going on at work that I am trying to complete within certain deadlines.

And its all very stressful.  It feels like  my time off for stress has had little or no impact on my work. I still feel under pressure that I am not sure is actually there. 

So tomorrow's psychologist appointment is the first in what I expect will be quite a number of appointments, or just a few strung out over a long period of time, to find out if i am likely to be diagnosed as ASD.

I'd like to say the diagnosis isn't that important to me, but it is. I'm that sort of person. I have to know. I can't just make a self-diagnosis, or have my doctor say "maybe its AS."  I have to know or I will obsess about it forever.  And as it is it is the thing that is on my mind virtually every minute of the day.

Its such an odd feeling, and it does make me anxious that I may have AS. I know there are people who would frown at me for saying that but it does.  Not because of what it is, but because I would have had it for so long without realising, without it being diagnosed, and in a lot of ways it means I don't know myself.  If I knew that I had something that affected my social interactions I would have looked into it and tried to integrate better, rather than assuming that other people have always got it wrong about me and are idiots.  I am open and honest, and very loyal to my friends, but I have damned few of them because I don't come across well on first meeting (except to other people who are similarly unusual, I have found) and this is part of my frustration.

I wish I had known.

But I also have anxiety the other way; that the psychologist is going to say "actually, you're pretty normal. you don't have ASD".  I can't believe it would happen, all things considered, but I can't help worrying about it.  I genuinely don't know what I would do.  I need other people to understand how it is for me. I need acknowledgement that I have these issues. My whole life has been a trial of frustration, loneliness, resentment, outbursts, inexplicable rage stupid, unjustifiable decisions (to any NT person), and as I have got older pretty regular periods of stress and depression as I fail to find a way to cope with my life.

I'm not looking for an excuse, but I do need to find who I am to find how to cope

The agony of work

Anxiety.

Its my constant companion. From the moment I wake up in the morning until I go to sleep at night I am either feeling anxious about something or awaiting the next visit from the anxiety fairy.

It is at its worst when I am at work, and my mode for combating it is to sink into the job itself as much as possible and to shut out the outside factors. However, this is not always possible for two reasons

1. I work in quite a busy office environment which is open-plan and always has at least 4 members of staff
2. I'm the admin manager.

Being the Admin Manager means that I am a destination, and that people want to talk to me and ask me questions. As long as they relate to the process of work, this is fine. I can handle that. But when it comes to gossip and general office chat I am not so good.  There is a lot within conversation that isn't said, so many significant glances, nods of the head and in-jokes that are over my head.

I find it difficult to judge whether people are deliberately talking around me as they don't want me to know something or whether they expect me to be able to interpret this implicit sign language.

I can't.  I just can't.

Dealing with my boss is very difficult as well. While I can interpret most conversations (I think) I find it difficult to deal with her very definitive yet vague statements of "you know what needs to be done. Please sort it out" because I very often don't know what needs to be done, and I hate sitting looking at her blankly, and having to say "no I don't".

I also hate the fact I can't play the office politics games.  NO, scratch that. I hate the office politics games.  I can't bluff, disseminate, use delaying tactics or distract by switching people's attention to another topic. it doesn't work for me and even trying just makes me more anxious.  If I haven't done something I will say so, unlike some of my co-workers who will claim they are "nearly finished", or that it is ongoing.  The worst thing about it is that I am the one who ends up looking bad and ineffective, simply because I have been honest in my appraisal of my own work.

And of course people don't realise that this bothers me because even I'm new to being AS, and I certainly don't expect my co-workers to take it into account. Why would they? It really is my issue to deal with.

Every day I have to remind myself that no-one is doing any of this to deliberately upset me. Every day I try to bury myself in the work and interact as little as I need to. Every day is a struggle, but its a struggle that I feel I am getting on top of as I accept my AS nature.

My life in bullet points

I recently found this article on How to describe an Aspie to a lay person whic was very helpful to me as it had descriptions of social situations from the Aspie perspective, and a lot of it was very familiar.

What i found particularly useful was the layout of the 3 categories AS is determined by as it is the first time i have seen it in a fashion which I can easily relate to myself.

Social Interaction

He or she may:

• appear to be indifferent to others or socially isolated.
• be unable to read social cues.
• behave in what may seem an inappropriate or odd manner.
• appear to lack empathy,
• avoid eye contact when under pressure.

Social Communication
He or she may:

• have difficulty in understanding tone of voice, intonation, or facial expression.
• make a literal interpretation of figurative or metaphorical speech.
• find it difficult to hold a two-way conversation.
• become agitated in response or come across as argumentative or even over-compliant.
• use formal, stilted or pedantic language.
• have poor concentration and thus poor listening skills.
• be honest to the extent of bluntness or rudeness.

Social Imagination
He or she may:

• have difficulty in foreseeing the consequences of their actions.
• become extremely anxious because of unexpected events or changes in routine.
• like set rules, and overreact to other people’s infringement of them.
• often have particular special interests, which may become obsessions.
• find it difficult to imagine or empathise with another person’s point of view.

right from point 1, that's me. i find it so hard to lead in a social situation and really need people to come and start the conversation with me. its not that i don't want to participate, i just don't know how or where to start, and even when i do its normally in a really inappropriate or unusual way.

I'll have to go and let aspienaut know I have linked it, and do more self-examination against it later.