New year: the inscrutable future

Its a time when traditionally people do the who "new me" thing. Me? I don't think you can decide to change yourself based on a date. That's not a plan which will work in the long term. You need more incentive.

I feel I have been moving in a different direction for some months now, and when I look at january 2013 compared with now, I notice a few differences.

1 - I am now diagnosed (obviously)
2 - I am not on a knife edge in my marriage
3 - I have a new job
4 - I am substantially fatter (and i was never small)
5 - My right arm is in a cast (and trying to type is a proper bugger's muddle!)

While some of those things were fairly predictable (increase in girth) not all were, and all of them have come with different effects on my life: my diagnosis has drawn me into the AS community (including another irregular blog here, my happier marriage has reduced my worry, as has my new job, although it is less stimulating that the old one, my weight gain has made me unhappy with my size and appearance, and resolve that I must do something to fix it, and my arm in a cast - really surprising, overall - is
making everything more difficult, including blogging

So my decisions for this year are informed by last year but also by my attempt at long term planning. To be clear, I am not good at this.  I don't know if its an aspie thing or just a me-thing, but I can't visualise further than about 6 months in the future, which means I am generally good at short-term and annual planning, but not long term. Whatever the basis for it, I need to work at making long term plans rather than undertaking actions which will have long-term consequences.

As a result, here is my list of thinks I need to do this year, and feel I have or can gather the motivation to

• try to buy a house: long-term plan
• go on holiday: annual plan, but secondary to house buying, if something has to give way
• lose weight: a classic, but i think my health is suffering. I look and feel terrible and need to change that
• get more involved in the AS community online
• volunteer in real life, perhaps undertaking fundraising
• find a social activity to get involved with.

For me, this is a tall order, but i have 350-odd days to manage to make progress on each of these.

overall, i am feeling optimistic about 2014: financially I am in a better position, I feel more comfortable in my marriage and we are looking to buy a house for the first time. Knowing i have AS has really freed up my mind to stop worrying about those things which are "wrong" with me and accept them. no longer am I the self-hating geek I have been forever but a guy who finally knows why he is different, and that its no bad thing. I hope everyone else can view 2014 with a similar level of optimism.

A2's guide to a low stress christmas for ASD families

I love Christmas. Always have. Even through my awkward teenage years when visitors were welcome but I would sit silently in a room with them.

As I have got older, it has become even more exciting for me, and with the addition of 2 kiddies to the household, I don't think it could be bigger.

Which also means its stressful!

Having a diagnosis myself as well as 2 kids on the spectrum means that to have the opportunity to enjoy christmas, we need to follow a few rules, and I think that these might be pretty useful to other people in a similar situation.

So, here goes.

1 - PLAN! Spontaneity is nice in its place, but at Christmas, ASD children will be getting wound up in a way its hard to calm them down from. The entire world is throwing Christmas excitement at them. So, have a calendar, or a wall-planner, or a visual timetable they can see, and talk them through what is happening each day so they know what to expect.  At the moment mine says

Dec 18 - School all day
Dec 19 - School half day then playing at home
Dec 20 - Take Daddy to hospital/ playing at home
Dec 21 - Daddy's Birthday
Dec 22 - Playing at home
Dec 23 - Granny and Pappi coming
Dec 24 - Christmas Eve, Uncle AJ coming to stay
Dec 25 - Christmas Day: Uncle AJ, Granny and Pappi visiting

etc..We also always make sure we have a laminated sheet like a social story which has details of what is going on at each point through the day. this gives them much-needed structure and routine.

2 – Minimise unexpected visitors. I know this one seems a little odd. How can you minimise the unexpected?  Well, consider who the most likely people are to come visiting, and get in contact with them pre-emptively. Suggest a day/ time they might like to come round, and agree a date time with them, and stress to them no unannounced visits! I always try to organise a single day, maybe two, over the holidays to have all of our visitors as I find that one day with multiple visitors is easier for our girls (and us!) to handle than a few visitors over multiple days.  This year, we have invited people round for a Boxing Day leftover party, so by the end of the day on the 26^th, we will have seen all family who are likely to want to come round.

3 – Have enough for everyone! Its bad enough when NT kids fight over things. Just imagine what its like for ASD kids with their very egocentric world-view and inability to grasp the world view of others. Wherever possible, try to make sure that there is at least 1 of everything available to avoid the inevitable screaming meltdowns when “sharing” is suggested.

4 – keep sensory stimulation to a minimum. Flashing lights, crackers, balloons, music, cooking smells, alcohol: Christmas can be overwhelming for the most well-balanced person. To someone with sensory issues, which come hand in hand with ASD, it really can be too much.  Try to tone this down where you can: static Christmas lights rather than flashing, or ones with a slow pulse, no decorations which play tunes or move.  My girls really don’t like loud noises, so crackers are a no-go (or at best, they have to wear their ear defenders when they pull them) and the fear of balloons popping causes hysteria, so they are right out. Involving the kids with some aspect of helping with the cooking can mitigate the dislike of the odours. Alcohol, I’d recommend holding until the evening when they are not around so that the very strong smell of alcohol (and over-the-top antics of the well-fuelled) don’t upset them.

5 – on Christmas day, give them the opportunity to be excited and open presents, but don’t give them everything at once – it can lead to sensory overload. Try to ensure they only open 1 or 2 gifts at a time and then enjoy those items before moving on to something else. But remember its still important to keep up the...

6 – ROUTINE! As much as possible, get dressed at the same time, eat breakfast at the same time, if you are toilet training, have your potty breaks at the same time.  Nothing makes ASD children more anxious than unpredictability.

7 – Distractions. A good rule of thumb is always have something to hand to distract them with should it look like they are finding it too much

Christmas should be exciting and fun, but there’s no reason it has to be too much for ASD children (and dads like me!) to enjoy with everyone else with a little bit of planning and forethought.

For anyone else reading this who is part of an extended ASD family, please take note of how much work we have to put into keeping calm on Christmas. This is why we don't come to your house, its why we ask you don't arrive unexpectedly, its why, no matter how well-meaning your offer of help is, we've got this covered.  If you really want to help, come when you say you will, bring what you say you will, leave when you say you will and support our decisions and routine.  This will help us keep meltdowns at bad, and ensure that we all have the best Christmas we can.

Family frustrations

Days like today, I really hate.

Wife has been up early, since before 6, with DD2. And as a result she is already feeling tired. Which is fine and understandable. 

But she is also doing a lot of huffing and harrumphing and so far today between then and now, when she is going for a shower, she has not got off the couch, leaving me to do all of the dressing of the kids, the breakfasts, the chasing around after them etc.

All of which would still be fine if it didn’t feel like she was also being grumpy and disapproving at me, like I’m doing something wrong. I really don’t think I am. I’ve been doing household chores and playing with the kids and I just feel like I am being constantly disapproved of.

Maybe its just paranoia, but it doesn’t change the fact that this is how it feels.

To be honest, all I want right now is a little peace and quiet in my room, just a few minutes reading to try to change my mind’s focus, but now she’s in the shower I can’t do that, so instead I am trying to get everything down in this blog post whilst trying to fulfil kiddy requests for snack, juice and cuddles.

I know wife is very tired at the moment ad she has taken on a college course and I don’t think she realised how much work teacher training was going to be. She has spread herself too thin, and at the moment it feels like I am the one losing out, and I am being seen as a distraction and a source of tension.

Edit: and in a strangely ironic twist, it turns out her issues are not about me at all. She was humiliated in class by a lecturer yesterday and is obsessing about that.

This, combined with the worry over my upcoming surgery on my “good” hand means that I am currently not in the best frame of mind, and I’m feeling a little abandoned and taken for granted.

I find it hard to speak to her about these things however as we don’t seem to be able to have discussions like this without the becoming fights about something else.  I am very poor at keeping rational when talking about my emotions, and I know she feels very frustrated about living in a house where 3 people have asd and her needs always come last.

Its frustrating, miserable and depressing, and I really don’t have a clue how to go about addressing it positively, so I have no doubt when she comes out of the shower I won’t talk about it, and will try to simply put up with her silent disapproval father than end up speaking out and “causing” a fight.

The scourge that is Helpful People

Whether its part of my nature, a product of my environment or just something to do with being aspie, I have trouble asking for help.

Mainly, I just don’t feel I need it. Whatever I am attempting to undertake, I am perfectly competent to achieve, or I wouldn’t have started it in the first place. Simple, pragmatic fact.

Except its not a fact.  In what I know is a very aspie way, my view of the world is very black and white. I have trained myself over many years to perceive the almost invisible shades of grey that NTs see in everything.  And I can now, when I try, perceive those shades of grey in most things, but almost never in myself or my own abilities.

After a very long day, I was having trouble using the computer at home; simply selecting the option on a drop-down menu in Word was proving a hell of a challenge but, because I know that I am competent at using Word, when wife started making suggestions and, worse, pointing at the screen and showing me where to click, I verbally lashed out at her. I finished what I was doing and went to the kitchen to put the kettle on to make tea – my classic move of “I’m leaving the room, leave me alone” – and have a bit of quiet time to calm down.

Which would have been great if wife hadn’t then came in and said that when she tried to help it would be nice to have some gratitude.

Cue fight.

Now I’m sure any aspies reading this will understand the problem. Its not about someone helping, its about someone effectively questioning your competency, and trying to “help” where help is not necessary – even when it is!

The fight was brief, and I did explain to wife my frustrations at my own performance and the perceived criticism, but that I did appreciate that she meant well, and so its all sorted out.

Until next time, when virtually the same thing will happen again and we’ll end up having the same fight.

So, I need a solution; how do I convince myself that someone’s offer of help is not about criticism of me or my ability but a genuine offer of assistance with no agenda, particularly when I am rattlin’ (a good colloquialism for on the edge)

For now, I am simply going to watch for these instances and make a note of how often they happen and what my response is, how often it becomes a fight.

I suppose sometimes letting someone must be better as it will keep the peace, and there are days where its better to keep the peace than make a point, right?

 

Diagnosis!

Finally!

After a year or more of waiting, I have been diagnosed with Asperger's syndrome.

So. Aspie. Just as I had thought, hoped and feared.

And while it comes as a tremendous relief, it is also tinged with sadness as I know I can never be "normal". but then what is normal other than the average you get when you throw all elements of a sample together and find what is in the middle. No-one necessarily fulfils the criteria of normality perfectly, I am just farther from it than other people.

And in a lot of ways this is a good thing. I have a name for my little box, I can study it and I can become more self-aware. There are many other people who don't have this privilege; other people that don't have a ready-build support society both online and offline to assist in any adjustments and give advice.

I had always intended to "out" myself once I was diagnosed, no longer using the anonymousaspie handle and just using my own name (or at least my own picture), but over the last year I've become quite used to being A2, and to be honest I do still want some level of anonymity.  As some people have observed to me, much of my blog is very personal and brutally honest.  I know some of it would shock and upset my wife, and I don't really want to do that, so for the moment, so that I can continue writing with complete freedom, I'm going to stick to being anonymous.

What comes next?

Well, basically, nothing. Life goes on. I tell people who I feel need to know, I look into what support mechanisms exist and see if they would help me.  But in essence nothing changes other than I have the confidence of knowing who and what I am and where that puts me in relation to the rest of the world.

I can't actually imagine a more positive outcome than this.

Topsy turvy world

What a few weeks its been!

I had a meltdown at work. A full-on, screaming,  body-shaking uncontrollable rage meltdown which resulted in me going fully overboard, quitting my job and storming out.  There's more to the story, and it involves me putting a formal complaint in against the head of the department and working out my notice once in was assured that I wouldn't have to work with her.

But it was awful. I have never felt so out of control, so helpless and so frustrated and so ANGRY! I swear that woman deliberately goaded me into the meltdown, just so she could fire me due to my reaction.

Anyway, I left.

So, jobless, panicking, wife starting college, daughters just started school after summer holidays. For someone like me who thrives on routine this was as traumatic as it could have been.

So I work out my notice and on the last day, last Friday, I still did not have a job to go to. Terrified for what the future was going to bring for me and my family I left the workplace almost in tears. I was happy I wouldn't be going back there to work with that bullying, discriminating bitch, but just so worried.

And on Monday I had an interview, which by Tuesday had become a job offer and by next Monday will be back to full time gainful employment.

Awesome!

It just goes to show that sometimes throwing yourself into the abyss of uncertainty can have positive consequences. I have taken myself so far out of my comfort zone by doing this, but I think in the long run it will have positive benefits, not only taking away the stress of working in that place for that woman but just for the experience of having taken a leap of faith and have it work out.

The Process

On 21st of August, in a small, secluded little collection of buildings, I began my assessment process.

It has taken a year or so to get to this point, and the outcome is not guaranteed, but I have no words to describe the immense sense of relief to be talking to experts, discussing Aspergers as a condition, to be undergoing diagnostic process, to be able to just let go and tell someone who might understand just how hard it all is on a daily basis; how hard it is to care, how hard it is to make sure I am giving appropriate responses, how hard it is to keep control of my tongue and make sure that I'm not inadvertently offending the world.

I have seen them 3 times and they have decided they have all the information they need to consider what, if any, diagnosis there will be.  While they couldn't say for sure, they did say that there is a very good chance that Aspergers would be the diagnosis.

And I got an odd rush of emotion; sadness, anger, anxiety and relief. I had to take a few minutes to sit in the car on my own quietly just to let it all sink in.  Finally, maybe, I have a framework to help me understand myself. But isn't it funny that I need someone else's permission before I can fully grasp it?

I wish I had spent more time at the office

I was really looking forward to Easter Weekend.  I get the Friday & Monday off (thank you Bank Holidays), and there was some very promising television, namely Doctor Who, Game of Thrones, Revolution and Life's too Short.  I genuinely thought I would have a great time.

Simultaneously, however, I decided to see what would happen if I stopped taking my medication.  We're not talking anything really serious, just antidepressants (Citalopram, 40 mg daily).

And for the first 2 drug-free days I felt fantastic. This was Wednesday and Thursday, and I was absolutely pinging off walls, upbeat and lively and having great fun in work. It was the first time in a long time that I felt connected with people in the work environment and really talking to them. I even listened to them and paid attention.  I started to wonder if the drugs were actually doing more harm than good, so come the weekend I was confident I was going to have a great time with my kids and my wife!

Ok, the short version is that this didn't happen. What did happen was tetchiness, car sickness, unnecessary screaming, incorrect plating up of meals, incorrect plates, dislike of previously favoured foodstuffs, short tempers, thrown toys, short notice visiting/ visitors, silently counting to ten, weeing in chairs, defiance, gardening in a bloody cold wind and demand for trips out.

All in all, I would rather have been at work, which is a sad indictment of my ability to spend time with my family.  I have been high and happy at work followed by depressed and angry at home, and I don't like it.

As you might expect I have started taking my pills again, but what I really need now is a day completely to myself with no interference.  I can feel my head pounding and the thoughts trying to get out. I can feel the frustration under my fingertips vibrating with pent-up anger as i watch myself back over this "holiday" weekend, and see how little it felt like a holiday to me.#

I really just want 1 day of peace but don't know how I can achieve it, so in the short term I'll look forward to a blessed day of relief by going in to the most stressful office I've ever known.

Compared to this weekend it'll be a Zen garden.

Finding the balance: Social interaction vs: social isolation

this is approximately how I socialise

I like being in my own company.

I don't get lonely on my own very often.  I don't feel the need to be with other people. I don't enjoy being with most people and, frankly, if I can avoid a social engagement without offending people, I normally will.


I do understand, however, that this is not universal, and a lot of people would say this is not normal.

At the moment, Wife is trying to encourage me into more social activities. With all the changes that have happened to us in the last 12 months, she has decided to be more pro-active about her own social life rather than relying on me for one, and so now she has joined 2 different folk music groups, and her weekends are normally taken up with practice, ceilidhs, gigs and gatherings.  And she loves it. It makes her very happy.

So, understandably, she is trying to encourage me to find something that I am passionate about and locate a group to join. This isn't a new drive on her part, but it is more sustained than it has been previously.  I completely understand her perspective: that finding something you love to do is a blessing, that its fun, that it will help me develop friends and relationships, that she won't feel the pressure of being my entire social circle.

But here's the thing: while I'm not against the idea of having a social life per se, the more she tries to talk/ force me into doing it, the less likely I am to do it.

There is also the fact that the people with whom I am most likely to spend time are people not too dissimilar from me. Gamers, geeks, nerds and social outcasts, and if I'm perfectly honest, most people like that make me cringe, and while I might be happy to game with them, i really don't want to spend social time with someone likely to incorporate RP conversations into real life activities. I just can't deal with that.

What wife doesn't understand is that the biggest issue for me now is one of confidence.  Before I realised the extent of my difference from other people I was bulletproof in social situations: full of confidence uncaring about what other people thought of me and happy to do my own thing. It didn't occur to me that there could be anything wrong or inappropriate about what I said, what I did and how I approached people.   Now, however, things are different.  I am now very aware of my shortcomings in comparison to "normal" people, and i can't stop worrying about whether I am offending people, upsetting people or acting inappropriately.

Which means I am boring. I do nothing. I don't engage in conversation of my own accord, but wait for people to talk to me - which given that I am the silent stranger in the corner happens rarely.

I feel its a conundrum.  I don't want to socialise for the sake of it, but I can see that Wife thinks it will help both of us.  I don't mind doing it, but don't want to be forced into it. I can't be the brash, confident person I was before - turns out ignorance really is bliss.

I will work on it as i don't want to completely isolate myself, particularly with my recent marital issues, but I don't know what the solution is.

...and that's how i got banned from Tesco.

Its amazing how the little things you don't think about get you into trouble. Let me tell you a story.

Today I went shopping and took me eldest daughter with me. She is 5 and has autism

As I always do, just before we left I asked her to go to the toilet, just to make sure we were safe for the hour or so that we would be out.  I hadn't taken into account the amount of fruit juice she had been drinking in the morning. So it came as something of a surprise to me when she decided to tell me in a quiet voice, at the farthest away part of the store, on a busy Saturday at 2pm that she needed to go to the toilet.

Immediately I size up the situation. Not going to the toilet is, not an option. She can't really hold it and will melt down if wet. I start moving in the direction of the facilities. It's busy, so I am dodging in and out of trollies and people, causing a certain amount of havoc as I go against the flow.  Thinking on the move, I consider that I don't have a change of clothes, that she will not be able to cope with having wet pants and trousers, and so I determine I need to get there as quickly as possible and speed up. Credit to my girl, she sped up too, but not quite as fast as I would have liked.  By the time we reach the toilet I am practically running, dragging her with me.

I abandon the trolly outside the loos and aim straight for the disabled loos - Engaged. argh! Without a break in stride I hustle her into the men's toilet - 2 cubicles, both occupied. Dammit!

By this point she is dancing and whining, but all I can do is tell her she has to wait.  As I am looking for a solution my eyes alight on the urinals...

And I get an idea.

So, quickly whipping down her trousers and pants, I lift her up and hold her over the urinal. Genius me!

"right" I say "use the toilet".

And frankly, this is where I went wrong. For, you see, I hadn't asked her what she needed to do in the toilet. Imagine my horror when I feel her tense up and start to strain.  And sure enough what I assumed was going to be number 1 was number 2.

And with perfect timing a cleaner enters the toilet as I am trying to figure out how to clean her bum without access to a cubicle. He takes one look at the accusatory turd in the urinal. A quick radio message to security later and I am being asked to leave the premises and not come back.  

But I do not leave. I explain to them about autism and the likelihood of a screaming fit if they force me to leave now plus I already have a trolly full of food outside that they will have to put back on the shelves, so grudgingly the security person allows me to collect the final item on my list, pay for my goods and leave I peace but not before reminding me that he mows my face and if I return the police will be called.

Strangely I find this funny rather than annoying. I'm sure I can resolve it with a letter to the manager but what a way to spend your Saturday morning!

Is there a socially acceptable way to say "your tits look bigger!" and other stangeness

I've fallen into bad habits.

That is to say, I've fallen into my old habits, and am acting like nothing is different (again!). I have to admit its very difficult to reconcile the ASD side of myself with my self-image.  I find it hard to acknowledge that there is something different about me (there definitely isn't anything wrong with me!) when what I am is all I know.

But there are days, like today, when my strangeness is right out there in the open and I just can't escape it.  And when i do, I come running back to blogging like an old friend who will not judge me. Maybe this'll teach me to do it more often again. Who knows? (rhetorical)

Today alone I have had 2 incidents within the space of a few minutes which unbalanced me.  Firstly was when I overheard a conversation about one of the people in work needing to borrow a laptop - a scarce resource at the moment - and being told that we couldn't help. She then realised someone else who she would be working with may have one, and expressed this by saying "Steve might have his laptop, mightn't he?"

My face flushed and my stomach grew taut. I could feel myself starting to hyperventilate and had to keep my head down until they left the room. I immediately scuttled over to another colleague and asked "what do you think of the word "mightn't"?". She pondered this for a moment and said "well, its a colloquial use term, but not one I would use myself."

I frowned "so my instinct to throttle her for it is an overreaction?"

"definitely".

 That was an hour ago, and I still don't think it is! MIGHTN'T?!?!?!?!?! There aren't enough swear words in the world to express my distaste.

Shortly after that, I walked past another colleague who is lucky enough to be pregnant again, and I noticed that as well as her swelling belly, her chest is growing. She is fairly flat-chested normally, so its noticeable.

 I wanted to try to find a polite way to mention this, which appears to be an impossibility

 wow, you're really starting to swell now.  Have you had to buy new bras yet?  no, that makes me sound like I am interested in her underwear.

Are your nipples all sensitive? hmm... a definite no.

how many sizes have your boobs incre...just stop.

I found myself stuck in an obsessive loop: I can't not say anything, but there is nothing I can say, and I started getting frantic and panicky, and had to go and talk to the new girl (who is middle aged and sensible) with whom i have developed a decent working  relationship, just to say to her "Can you tell me if there is a polite way of telling a woman "your tits look bigger". I muddled this sentence out all in one, so it was more like

"Imsorryi'mnottryingtobeoffensivebutcanyoutellmeifthereisapolitewayoftellingawoman
"yourtitslookbigger"becauseihavetosayitandmybrainismelting!!!"

she took it in her stride, laughed with me about my dilemma and gave me a few tips on talking about how well my pregnant colleague is blossoming/ blooming/ looking flush with health. All of which will apparently be interpreted as "i can see your bosom expanding."

So I did.

And I am left feeling disappointed as I don't feel I said what i wanted to say, but at the same time the compulsion has left me and I can move on.  I'm glad its over, but it has jst served to remind me that all it takes is 2 minor incidents in quick succession and I am close to my limit.  I need to find a way to cope better.

Lockerbie

Lockerbie

 For anyone in my part of the world, Lockerbie is a name synonymous with horror and pain.  It was probably the first really significant event in my life which had a personal impact, and looking back on my behaviour linked to it, I can see the early Aspie warning signs.
 I vividly remember the news report on the television, my mother wailing as she realised that the plane had landed on my Aunt & Uncle's house, killing them and their daughter, and at a stroke orphaning their two sons.  My mum was distraught as she had been close to her cousin when they were children, my dad was comforting her as she cried.

 Me? I was just annoyed that this had ruined my birthday. Sure I was upset, but mainly because I was feeling sorry for myself as this would now be what this day was be about.

Flash forward 4 years. On the morning of my birthday as I was getting my cake, my dad got a phonecall giving him the tragic news that his younger brother had committed suicide. He was devastated, and completely fell apart. I've never seen him as vulnerable as he was in that moment.

Me? I just flipped out that my uncle couldn't choose any other fucking day to do this. Looking back at it, its clear that all of this affected me badly, but I can't say it was through grief.  It was anger, self-pity, and selfishness that people kept ruining my day by dying.

I know it sounds like I was just a horrifically selfish teenager, and no doubt that is true, but no matter how self-centered someone is, surely an element of grief is normal for the deaths of 4 family members.  

Anyway, my solution for how to deal with these 2 family tragedies was to decide never to celebrate my birthday on that day again, but to pick a neutral day in May when nothing ever happens. I did this for about 10 years, and refused to acknowledge birthday greetings from my family.

Amazingly, my family went with it. They actually put up with this madness! And I am grateful for that, but came the day when none of it seemed to have any meaning any more, and I decided to take my day back. Ans since then I've been growing older properly.

But I wonder sometimes whether my rage and frustration about this, my inability to explain my rage to people, my lack of understanding of how important and painful all of this was could have - and maybe should have - been interpreted by someone as ASD symptoms.  I guess I'll never know, but it was from about then that I realised that I really thought differently to everyone else.

As a sad post-script to this story, my 2 cousins orphaned at Lockerbie have both since died. One stepped in front of a train, the other overdosed on drugs. An entire branch of a family wiped out because of this incident.

Star Wars geekery

OK, so I'm back here.

My website is all well and good for other stuff, but I like this place for just being able to write a simple blog.

And today, I have just had fun!  wife pointed out a bunch of Star Wars snowflake templates to me, and I just couldn't not do it!

Here are my Imperial Guard and Scout Trooper snowflakes.  Am I ever proud of myself for this!

This is my A-Wing.  It was one of the first ones I did cos it looked easy.  Since then i have also done an X-wing, A TIE-fighter pilot, C3PO and Boba Fett!

And it gets better! I am planning to do a Vader as well!

Wife subsequently suggested that I use sticky plastic to cover them , which i have done, and so now they are resilient, and will last for more than just 1 day before they fall apart.  I now have annual geek snowflakes to go with my centerpiece of Optimus Prime in a Santa Hat done as a cross stitch.

Some days embracing my geek rules!

The anatomy of love

I have said for many years that you choose who you love, and I believe it. With all the girls I have pursued over the years I remember actively deciding that I was going to pursue them, and effectively selecting them for love.  I know not all of them have appreciated this but hey, everyone was someone's stalker once, right?


But now I am looking at things with my Aspie hat on I have started wondering if this is normal.  The fact that people have disagreed with me about it many times suggests that it is not.


From all around me in advertising, films, literature and people's descriptions of their own lives I get the message that love is an impulse; uncontrollable, unpredictable, that "the heart wants what it wants."


Not mine. My heart wants what I tell it to!


I've always felt that people who walk the "heart want" line are simply absolving themselves of responsibility to their existing relationships, being lazy or simply (badly) justifying adultery. I read a quote from Johnny Depp recently, and while I can't remember it word for word, it was along the lines of "if you love 2 things equally, choose the second, as if you really loved the first one you wouldn't have fallen in love again".  This just smacks of desperate justification and I just hate this binary view, that it is only possible to love 1 person.


But what if I am wrong? What if love is that wild and unpredictable? What if I am defective in my emotions, and simply don't have the normal "love" drive?  I am very much a slave to some of my other emotions - rage, frustration, anger - but I never hear anyone waxing lyrical about "the hands punch what the hands want to punch", but this is where I feel my strongest emotions lie, and when I lose control of them I know that people around me worry as I become aggressive and unpredictable, and it takes great effort of will not to be violent (I am well practiced by now. Violence only happens to inanimate objects)


But I wonder. Is this what neurotypical people feel when they are in love?  Overpowering, madly distracting, unfocused emotion that practically paralyses them until they can deal with it?


If so, I'm glad to be love-deficient, and glad I make my own choices.

The pain of a "new" aspie

This is the email I sent to my wife yesterday, trying to explain my behaviour when she refused my help twice in the morning when she was trying to do a quick repair on a child's shoe.

"I'm sorry my frustration boiled over a little this morning.  You're right. You not taking an elastic band is nothing to get upset about. 
 
Its other things that are piling up, things that are concerning me more every day.
 
Since the Aspie question was raised, I feel that you have been looking at me in a different way, and I'm not really comfortable with it.  I always seem to be in your way, or interrupting you, or feel like I am interfering in something where you would rather I didn't.

I feel sad that trying to hug you elicits no reaction any more. I feel that when I kiss you, you seem relieved when the moment passes. Maybe all of this is my imagination, but it doesn't feel like it is.
 
I don't feel like you are viewing me as a partner any more. I feel like I am being seen as another child to be "dealt with", a burden to be borne and a problem to be handled.
 
And it frustrates me and makes me sad.
 
the elastic band thing was just another little thing on top of a pile of neuroses I have at the moment. It just felt like yet another way where I was just getting in the way, especially after my other suggestion had just been dismissed when i was trying to help you avoid having to stand holding a shoe for 5-10 mins.
 
And in the long run my worry is that we won't get past this, that "living with 3 disabled people" is going to be too much for you to handle. 

To my eyes it already is, and I wonder whether you're trying to figure out how to do it and  keep sane, or figure out if you could deal with the girls without me.
 
Honestly, I have days where I think you would be better off without me as I  would be 1 less person you feel you have to take care of, but then I don't know  how you would deal with the girls on your own.

I certainly wouldn't blame you if you said "too much".
 
I know that this has been hard for you, and will continue to be, but the thing that is hardest for me in all of this is not the stress of the summer, not the AS, not the reflection on my whole life, but its facing you every day and feeling I am less in your eyes."

What I'm hiding from

For a week or so now I have been aware that I'm avoiding writing a blog, I'm avoiding tweeting, and I am avoiding thinking about or addressing "the Aspie Question".

And the reason for it is pretty simple, and pretty sad, really. I don't want to acknowledge that I am Aspie.

There are some days where the knowledge of AS and how it relates to me is a real comfort, as it means there is something that explains the often inexplicable in my life: the odd choices, the strange habits, the behaviour that even I have never been able to justify.

But then there are the other days, where I realise how different I am, how little I understand the people around me, how often I am excluded from conversations in a passive fashion, just because I can't read the body language of others, and I don't react as they understand.  Sometimes I look at it, and think that this is too much of a burden to bear, that if I stop acknowledging it I can continue on with my life as I understood it before someone suggested I might be Aspie.

However, today has stopped me in my tracks because of two incidents, each of which is powerful in their own right and together brought me to tears.

At my work, one of my colleagues has M.S.. I am her line manager, but she is one of the only people who I have told about my AS issues, because I feel she understands what it is to be different but look the same, and I really value her opinion and just to have someone to listen to me who can get it.  To be honest I see her more as a friend than a colleague. A couple of days ago she had a M.S. relapse, and as a result has permanently lost some feeling in her hand, her arm and her leg, and some bladder control.  She told me this, and I was truly sad about it.
 Today, I was spoken to by my boss, who told me that my colleague with M.S. doesn't feel she can talk to me as I gave very little reaction to her news to me about her relapse and her lack of feeling in her hand.  I was appalled! I am really sad for her and sometime give her lifts into work to try to make things easier for her, and am genuinely concerned for her well-being  but to hear her view, apparently all I did was stop typing for a few seconds when she told me, then started typing again.
 When I told my wife about this, she said that's normal for me. the bigger the news, the more emotional, the less likely I am to react to it. I simply sit still and absorb the information. I wasn't really aware of this, but I thought back and realised that she's right. Petty things can get me very animated. Big things stop me dead.

But following on from this, wife said to me that it often appears that I take things too well, and I joked about when our eldest was born by c-section. I was at work and the hospital called me to tell me that I didn't have to worry and that the baby would come today, I just said "OK, call me if the plan changes" at which point the person on the phone said "ah. no. you're maybe being a little too laid back. you need to come to the hospital now!" Wife didn't laugh though. she pointed out that she had thought about that recently, in the light of AS, and realised that this was typical of my reaction. someone said not to worry, so I didn't, but it hadn't even occurred to me that she might feel lonely, or in need of company, sitting lone in a delivery ward awaiting an emergency c-section, which is major surgery when you come right down to it.

And so I sat there, at the dinner table, considering that moment of 5 years ago, realising that not once had I considered how lonely and scared she might have been; how worried for our baby's health. I don't know what I did think, I really don't. but sitting at the table, for the first time, I became tearful thinking about how hard it must be on wife. 2 AS children and an AS husband who is now undertaking a journey of self discovery.  How hard is it on her to hold all this together. how often her needs get put last. how often her desires get overlooked.

And while I deny my Aspie nature I will never change, and I will always be that self-absorbed.  So, my task tonight is threefold:

1 - Read theories on Aspergers and dealing with it by experts, and find things that work for me
2 - Write my blog and remember why I started doing it in the first place as a self-therapy
3 - Acknowledge, and never forget.

Some days its hard, and some days its ok, but its an ever present fact that I need to face

I am Aspie

Stress in the workplace: How do I avoid it?

I find myself caught in a bit of a bind at work, at the moment. My co-workers expect me to do the same job I was doing before I had a month off due to stress and depression, while not seeming to realise that the job I was doing was the reason I had that time off.

So today, when I was asked to return to producing a weekly report rather than the monthly one I had changed to since coming back to work, I said no. Firmly. I even then explained that the repeated report writing was one of the reasons that I had had to take time off: too much expectation on me and too much criticism of the report, which was really only meant to be a tool to allow other people to complete their work. The criticism of the report became "shooting the messenger" and attacking it became more of a focus than dealing with the problems highlighted within it.

So after I made it clear that I wouldn't do it more than once per month, what I got was not a head-on attack but a barrage of sideways, sniping comments criticising me for being intransigent and questioning what use this report was.

To be clear, this data is available to everyone. Anyone could do this, given willingness to devote time to it. It’s not like I am the sole source of the information.

Anyway, I found that I couldn't deal with the passive-aggressive criticism and decided to deal with the situation in the best way I could, by picking up my things and walking out of the room. I fear, however, that this may not have been the best solution. It meant getting chased down the stairs by the deputy head of the department (my mentor) who wouldn't let me just go for a walk and clear my head but made me talk about it. As I didn't have the time to resolve it internally or calm down it means I resorted to a foul-mouthed tirade, threatened to walk out and let out my feelings on the guy who caused me the most grief. I don't think any of this was helpful. Looking back on it, my attempt to defuse myself has made me look unprofessional, childish, resentful, aggressive and unbalanced.
I feel I am letting myself down and don't seem to be able to find a way to fix this.

Finding out that I may have Asperger's has certainly opened my eyes to a lot, including why I react the way I do, but it doesn't always help me control my reactions or judge what is the best course of action in a situation. I can't gauge at the moment whether I did the right thing, but it doesn't feel like I did.

Right now I feel vulnerable and alienated, and I feel that I am being judged on the way I am trying to avoid the stress. I don't really know what I can do.

And as a beautiful irony, the guy who caused me to need to leave the room has just come to me to ask for a different report I promised him (this was no problem) and told me how hard it is to walk a line about firmly stating a position without offending people.

Not knowing is the worst!

In the next 3 days I am seeing a psychologist, and occupational therapist and undertaking an exam on accounts. I am also meant to be undertaking a project for my accounts qualification, but am currently 2 months behind and it is the last thing on my mind.  As well as that I have numerous projects going on at work that I am trying to complete within certain deadlines.

And its all very stressful.  It feels like  my time off for stress has had little or no impact on my work. I still feel under pressure that I am not sure is actually there. 

So tomorrow's psychologist appointment is the first in what I expect will be quite a number of appointments, or just a few strung out over a long period of time, to find out if i am likely to be diagnosed as ASD.

I'd like to say the diagnosis isn't that important to me, but it is. I'm that sort of person. I have to know. I can't just make a self-diagnosis, or have my doctor say "maybe its AS."  I have to know or I will obsess about it forever.  And as it is it is the thing that is on my mind virtually every minute of the day.

Its such an odd feeling, and it does make me anxious that I may have AS. I know there are people who would frown at me for saying that but it does.  Not because of what it is, but because I would have had it for so long without realising, without it being diagnosed, and in a lot of ways it means I don't know myself.  If I knew that I had something that affected my social interactions I would have looked into it and tried to integrate better, rather than assuming that other people have always got it wrong about me and are idiots.  I am open and honest, and very loyal to my friends, but I have damned few of them because I don't come across well on first meeting (except to other people who are similarly unusual, I have found) and this is part of my frustration.

I wish I had known.

But I also have anxiety the other way; that the psychologist is going to say "actually, you're pretty normal. you don't have ASD".  I can't believe it would happen, all things considered, but I can't help worrying about it.  I genuinely don't know what I would do.  I need other people to understand how it is for me. I need acknowledgement that I have these issues. My whole life has been a trial of frustration, loneliness, resentment, outbursts, inexplicable rage stupid, unjustifiable decisions (to any NT person), and as I have got older pretty regular periods of stress and depression as I fail to find a way to cope with my life.

I'm not looking for an excuse, but I do need to find who I am to find how to cope

An inexplicable worry explained

Around my mid-teenage years I remember becoming aware that I could be help responsible for things, a concept that seemed to elude me until then.  It was only when someone pointed a pretty serious accusation at me that I realised that things that I did and said could have serious consequences for me in my life.  At that point I resolved always to be completely truthful. Until then I had used truth or lies as I felt necessary, although there is no doubting that I am an awful liar.

But from that point I have always had the nagging worry that at some point i was going to end up in prison, and i don't know if that is normal. I assume its not. After all, why would people just generally worry that they were going to end up behind bars?

I have never been able to fully grasp this worry. I am generally a straight-up, honest and law abiding individual. Even times when I have broken the law during my wild years are unlikely to have carried jail terms: petty theft, smoking weed, illegal streaming/ downloading. But still, in the back of my head: you're going to end up in prison.  It really didn't help when wife's dad ended up in prison recently. It is the first time that it has been so close to home, and I overreacted hugely (of course).

But I begin to see now that the worry about prison was my brain's way of telling me that there was something wrong, that I didn't quite fit, and that I had to be extra careful as my rules and the rules of the NT world in which I live can clash.  A perfect example of this is when I was driving the other day and someone did a really stupid overtaking manuever on a fast junction.  Because he was breaking the rules I effectively tried to run him off the road, then when we reached the traffic lights I pulled in front of him, blocking 2 lanes, and had a confrontation with him on a busy road.

I started that. I could have just let him go, with his bad driving, but I almost crashed into him (my fault) then blocked the road (my fault) then nearly started a fight (which would have been my fault). if the police had become involved I think i would have been in serious trouble.

Looking at myself through the AS mirror I can see how close it has come a few times in my life that I had never realised before, and I need to be very careful which what I say and do to avoid getting into trouble.  I can't believe its taken me this many years to realise it.

Still, hopefully now I can avoid that prison which has been unconsciously following me around for years.

The strain of relationships

In  my life I have had very few serious relationships, and wife is the first woman I have ever lived with as part of a couple. I am aware that I have always had trouble interacting with girls I find attractive, and have found myself drawn to the  but unable to talk to them, first manifesting in high school with a girl I had a crush on whom I followed round during breaks. If I didn't know where she was it made me feel uncomfortable, and I know that it bothered her.  While she was a nice girl and we were occasionally friendly, she did have to ask me to stop following her around more than once.

It took me until I was 19 to have my first girlfriend (let's just skip over a couple of periods of investigation with other kids my age in late primary school years) and to become sexually active, and while we had a relationship which lasted 3 years it was not often healthy as I was obsessive and jealous and she was sexually liberal (and inducted a number of my friends in the ways of men and women)

Other relationships I have had have been of mutual convenience, self-destructive, short-term flings or simply disastrous   Fact is, wife is the only woman I have ever been with who I have felt comfortable with, who has made me see the world from another point of view.  I find her fascinating as well as lovely, although like all other people there is a lot she talks about that I have no interest in, but I am not so self involved as to completely ignore her. I just do the guy thing of smiling and nodding.

But...

but I wonder what harm I am doing her by staying with her. We have 2 children, one of whom has been diagnosed with autism, one on the path to a diagnosis of AS and then there's me, realising that I have AS, or am at that end of the spectrum.  Its all so very unfair on her. Wife is beautifully free-spirited, spontaneous, life-loving, a hippie and proud of it, but the hand that life has dealt her means that everything has to be organised all the time. There can be no spontaneity, no surprises, no sudden, unplanned decisions.  Routine, planning and organisation are her life now, and day by day I see the joy draining out of her.

And I wonder whether things would be better or worse if I was no longer part of the equation.  Since I have been with her I have been through 3 periods of depression, and there's no guarantee that this wont increase.  I have had 4 significant episodes of poor mental health in 8 years, and none before that(at least none where I knew that was what my problem was).

I am concerned that my mental state will only get worse, and that she will end up having to be nursemaid to 2 disabled children and a disabled husband who is mentally shattered, and I don't want to do that to her.

I am sure that defining the AS will help significantly, but I managed for 30 years without succumbing to depression, 30 years where i must have had AS, so it must be more than that.

What to do troubles me.  I love wife very much and don't want to do the wrong thing, but is it harder for her to deal with 2 disabled kids with the help of someone like me, and have to deal with my issues too, or to deal with them on her own?

Is this my lot in life? To never fit on to a relationship, to take the joy out of living?

I don't know, but its a thought that will certainly remain with me for some time.